FAQ

IDF Walk for Primary Immunodeficiency unites the PI community to help create better lives and improve diagnosis and access to treatment for individuals affected by these rare, chronic disorders.

Donations help IDF provide resources and services to the thousands who live with PI. IDF is a 501 (c)(3) non-profit organization, and contributions are tax-deductible to the maximum extent allowed by IRS regulations. Please consult a tax advisor to determine the tax deductibility of contributions.

Just like all walkers, patients and families affected by PI are encouraged to register and raise funds. Many of our highest individual fundraisers are patients and families.

A paid registration fee may be required to participate. View our detailed pricing here.

The required fee upon registration will guarantee you an IDF Walk for PI t-shirt and access to your Virtual Walk Day Pep Rally. After registration, we encourage you to raise at least $125 to help create better lives for those affected by PI.

If you are participating in Stride with IDF Coast to Coast, your t-shirt will be mailed to you at the end of the fall walk season (December). 

*An IDF Walk for PI t-shirt is only eligible for participants ages five and up. 

While it is encouraged to pre-register for IDF Walk for PI, we do offer registration on the day of the walk. Keep in mind that by registering four weeks before the walk, you can receive your IDF Walk for PI t-shirt in time for your Virtual Walk Day, and you'll have more time to maximize your fundraising! All walkers, regardless of age, must register to participate in IDF Walk for PI.

For all of you who are willing to go the extra mile, by raising $250 and above, we have some great new incentives to inspire and reward you for your fundraising success. As a reminder, you can raise funds all the way up until December 15, 2021, to earn the following rewards, available to view here. 

You will be sent an email when the incentive online claim form is ready, typically in December. Once you complete the claim form, you will receive your incentive in about four to six weeks.

Note: All rewards are awarded based on individual contributions and/or what the individual has raised. Rewards are not awarded on what a team has raised if you are part of a team, or on what a couple has raised if you are part of a couple. 

Upon registration, you will be eligible to have your official IDF Walk for PI t-shirt mailed to you. Please keep in mind it takes approximately four weeks to ship. If you are participating in Stride with IDF Coast to Coast, your t-shirt will be mailed to you at the end of the fall walk season (December).

*An IDF Walk for PI t-shirt is only eligible for participants ages five and up. 

We will do our best to ensure you receive your correct size.

IDF Walk for PI is a family-friendly walk. Children and strollers are welcome to participate in the walk but must be under direct adult supervision at all times. All ages may register for the walk and are eligible to receive an IDF Walk for PI t-shirt if they are ages five and up. 

Every adult who wishes to participate in the walk must register individually. If you are part of a couple, each of you will need to register.

The walk will take place rain or shine. Unless there are extreme weather conditions, the walk will go on. If rain is in the forecast, please dress accordingly so that fun will still be had by all! There will be no rain dates.

You do not need to walk in order to participate! Each walk route will be approximately 1 to 2 miles long and is intended to be easily accessible by stroller and wheelchair. This is a non-competitive walk, and all participants are encouraged to walk at their own pace, at a distance that they are comfortable with and able to complete without causing any physical strain. Any walker who is a patient with a primary immunodeficiency (or the parent of a walker under age 18) should confirm with their physician whether participation in the walk is advisable.

Absolutely! We welcome volunteers of ages 15 or older. While the volunteer tasks may vary with each walk, the IDF Walk for PI Volunteer Coordinator will assist with recruiting local volunteers prior to the walk day and help to manage volunteers the day of the walk. If you have any questions about our volunteer opportunities or would like to help out at the walk, please email volunteer@primaryimmune.org.

We are grateful for the support of national and local organizations. For more information, please click here to download our IDF Walk for PI Opportunities for Support 2020 or you can contact IDF at 800-296-4433, or email us at walk@primaryimmune.org.

While we encourage online giving, we do accept checks. Please make your check payable to: Immune Deficiency Foundation, with the memo line “IDF Walk for PI: and include the city of the walk”. Please make sure that in the memo it says who the donations should be credited to.

Mail it to the following address:
Immune Deficiency Foundation
110 West Road, Suite 300
Towson, MD 21204

Once your gift is received by IDF, a tax receipt will be mailed or emailed to you. Please send an email address if you would like this document to be emailed.

Not all sites are pet-friendly. Please confirm with IDF as to which sites are welcoming of your furry friend. Also, keep in mind that not everyone is comfortable with pets, many people are allergic, and many animals react differently in large crowds than they do at home.

The IDF Order of the Zebra is an elite group of fundraisers whose efforts make an extraordinary impact on the success of IDF Walk for PI. Each year, if you set a fundraising goal of $1,000 or more on your personal fundraising page and reach that goal before mid-December, you will be inducted into the IDF Order of the Zebra for that year. IDF Order of the Zebra is an annual tradition, and we’re grateful for those who reach this level year after year!

You too can become a member of the IDF Order of the Zebra by raising $1,000 or more on your personal fundraising page each year!

Members of the IDF Order of the Zebra receive the following benefits:
* A special item signifying your order membership that can be worn at the walk.
* An announcement of your name during the opening remarks at the Virtual Walk Day Pep Rally.
* A special badge for your personal fundraising page that signifies your membership.
* A thank you letter from John Boyle, IDF President & CEO.

IDF will reach out and make sure that you have the resources that you need to join this elite group of fundraisers. IDF is committed to helping you reach your goal because of the impact that your efforts will have on IDF Walk for PI! 

* Individual totals of $1,000 or more count towards the IDF Order of the Zebra.

A Walk-in-a-Box is precisely what it sounds like - an option that will help you form an in-person local walk in your community with family and friends. Provided in the box are IDF facemasks, towels, a yard sign, and other promotional materials.

You can secure a Walk-in-a-Box for yourself and your walk team by making an additional donation at the time of your IDF Walk for PI registration. 

We have multiple Walk-in-a-Box size options available. Please learn more about them by clicking here. 

Strava is an internet service for tracking human exercise such as walking. 

On your personal campaign, you can manually enter your walk information or have Strava automatically import it for you. We encourage you to set a walking goal and use Strava to track the steps you take leading up to your Virtual Walk Day Pep Rally. Turn it into a fundraising opportunity by having family and friends pledge $2 for every mile you walk.

We would like to encourage you to download the attached form to use as a guide and tracker. Download our Walk-A-Thon form here. 

Yes. You can make a donation to a Participant on a team or you can make a general location donation to a specific walk city.

Please make your check payable to: Immune Deficiency Foundation, with the memo line “IDF Walk for PI: and include the city of the walk”. Please make sure that in the memo it says who the donations should be credited to.

Once your gift is received by IDF, a tax receipt will be mailed or emailed to you. Please send an email address if you would like this document to be emailed.

All donations should be mailed to:
Immune Deficiency Foundation
110 West Road, Suite 300
Towson, MD 21204.

Please make all checks payable to: Immune Deficiency Foundation.
Please make sure that in the memo it says IDF Walk for PI and who the donations should be credited to.

Once your gift is received by IDF, a tax receipt will be mailed or emailed to you. Please send an email address if you would like this document to be emailed.

Click on the home page and begin typing the first or last name. Your options will display as you type.

Any donation made online should post immediately. If an online donation does not post within 10 minutes, please contact us.

All monetary donations are tax-deductible to the extent allowed by law.

No, registration fees are not tax-deductible. IRS rules do not permit the deduction of registration fees for charity walks/races. However, all donations made to the walk or towards your Walk-in-a-Box are entirely tax-deductible. 

Yes. For Canadian donations made online with a credit card, the amount entered in the online donation form will be in U.S. dollars.

Any donor who mailed their donation and provided an address will receive a receipt via mail once the donation has been processed. If you made your donation in installments, you will receive a receipt each time a monthly payment is processed.

Please send an email address if you would like this document to be emailed.

Yes, anyone who donates online, regardless of the amount, will receive a receipt via email.

A Tax ID number identifies Immune Deficiency Foundation as a 501(c)(3) non-profit Organization. The Immune Deficiency Foundation Tax ID number is 52-1214782

When you make a donation online, you can designate what you want to appear as your recognition name on the participant's Honor Roll. This may be your name, or it could be something such as "From the whole Wolf family" or "in memory of Aunt Cathy."

If a donation check has been written out to you personally, you may endorse the back of the check and mail it in with a completed donation form to Immune Deficiency Foundation.

 

It is not a good idea to send a cash donation in the mail. You may drop off the cash at Immune Deficiency Foundation along with your information or you can deposit the cash into your checking account and send a personal check from your account.

Please make your check payable to: Immune Deficiency Foundation, with the memo line “IDF Walk for PI: and include the city of the walk”. Please make sure that in the memo it says who the donations should be credited to.

Mail it to the following address:
Immune Deficiency Foundation
110 West Road, Suite 300
Towson, MD 21204

Once your gift is received by IDF, a tax receipt will be mailed or emailed to you. Please send an email address if you would like this document to be emailed.

Any donation made online should post immediately. If your donation does not post within 10 minutes, please contact Immune Deficiency Foundation.

You can't enter a check online. What you can do is enter a check as a pledge. This can be done in the fundraising section of your headquarters page. The status of the check will be pending until the check is received by Immune Deficiency Foundation.

A Tax ID number identifies Immune Deficiency Foundation as a 501(c)(3) non-profit organization. Many donors will request this number to validate their donation as tax-deductible. The Immune Deficiency Foundation Tax ID number is 52-1214782.

As your donors make a contribution, they have the option of whether or not they want to appear in the Honor Roll.

Log in with your email and password to visit your headquarters page. Select My Fundraising Report on the left side. You will then find a list of all of your donors as well as a list of all donors to your team .

To easily send thank-you emails to donors, follow these steps:

1. Log in to your fundraiser dashboard by clicking the "My HQ" link in the top right.
2. Click "My Fundraising Report" in the left sidebar.
3. Locate the donor/donation you'd like to thank, and click "Send Email" (If the donor didn't submit their email address, this option is unavailable.)
4. Type the message in the pop-up window, and click "Send Email".

You are receiving these emails because we would like to keep you updated on your fundraising efforts. If you wish to stop receiving these updates, please log in to your headquarters and edit your account preferences.

A personal URL is a shortened link to your team or personal page that you can send to friends and family in emails. A personal URL will look like this https://www.walkforpi.org/your name.

However, if you do not want your name to be in your personal URL you have the option to set your URL to whatever you would like it be when you first login to your dashboard. 

When a donor makes a donation online, s/he can enter text to appear on the fundraising honor roll. This may be the donor's name, or it could be something like "From the whole Wolf family" or "In Memory of Aunt Cathy".