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We Want to Hear about Your Walk Experience!

Wednesday, December 4, 2019

IDF Walk for PI – 2019 has been an outstanding success! With only three more walks to go, we want to express our gratitude for everyone who participated, making this year one of the best walk seasons yet.

As we near the end of another walk season and another year, we want to hear from you! We want to know why you stride with IDF pride and what IDF Walk for PI means to you. Share your favorite pictures, memories, and moments by sending us a direct message on Facebook @walkforpi for a chance to have your story and pictures shared!
 
Share your walk experience
 
In these final weeks, let’s keep spreading awareness and raising funds! To date, we’ve raised a total of $365,344. The deadline for walk donations is December 14.

We're Not Done Yet! - IDF Walk for PI

Tuesday, November 12, 2019

Can you believe that we’re more than halfway through IDF Walk for PI 2019? That’s right, we've already completed 17 walks and have just nine more to go! But don’t think for a second that we’re slowing down. With the help from those who have participated in our walks, we have fundraised $326,708 and we’re still going.

Individuals and teams can continue to donate and fundraise until December 14, 2019. So don’t worry if your walk has already passed. Keep spreading the word about IDF Walk for PI and raising funds to help support all of the zebras that are out there.

Need some ideas on how to keep up your momentum? We've got you covered!

- Partner with a restaurant around your area for a restaurant giving night.

- Host a community pancake breakfast, asking for a $5 donation to anyone who attends.

- Hold a silent auction with auction items donated from local businesses.

- Double your impact with matching gifts. Check to see if your employer will match gifts to IDF here.

The support and enthusiasm for IDF Walk for PI 2019 has been overwhelming and we want to continue with that momentum through the end of the year. Keep up the amazing work!
IDF Walk for PI 2019

National Walks (A-Z)
Boston, MA: Sunday, October 6
Chicago IL: Sunday, September 29
Los Angeles, CA: Sunday, November 17
New York, NY: Sunday, October 20
Philadelphia, PA: Sunday, October 13

Regional Walks (A-Z)
Atlanta, GA: Sunday, November 10
Baltimore, MD: Sunday, October 27
Cleveland, OH: Sunday, September 22
Dallas, TX: Saturday, November 9
Detroit, MI: Saturday, September 21
Orange County, CA: Saturday, November 16
San Francisco, CA: Sunday, September 22
St. Louis, MO: Saturday, October 12
St. Paul, MN: Saturday, October 5

Community Walks (A-Z)
Conway, SC: Saturday, November 9
Des Moines, IA: Sunday, September 22
Fort Lauderdale, FL: Saturday, December 7
Indianapolis, IN: Saturday, October 5
Kansas City, MO: Saturday, September 28
Leesburg, VA: Saturday, August 31
Omaha, NE: Sunday, September 8
Orlando, FL: Saturday, December 14
Portland, OR: Saturday, September 21
San Antonio, TX: Saturday, October 19
Tucson, AZ: Saturday, December 14
Warwick, RI: Sunday, September 8

National Walk Presenting Supporter
Takeda

National Walk Supporters 
CSL Behring
Grifols
Horizon Therapeutics
Octapharma
 
Click here to learn more about IDF Walk for PI. Questions? Contact us at walk@primaryimmune.org.

I Walk to Find a Cure: Didi McDonald

Wednesday, October 9, 2019

Didi McDonald’s life was forever changed after being diagnosed with Common Variable Immune Deficiency (CVID) last year in 2018 at 26 years old. After receiving her diagnosis, Didi felt overwhelmed and unsure of how to cope with a disease that she never heard of. However, life became easier once she discovered the Immune Deficiency Foundation (IDF).

“IDF made the diagnosis manageable with all the amazing resources they provide,” says Didi. “I am very thankful that IDF exists to bring us together and to help us manage our diagnoses.”

Today, Didi is actively participating in IDF Walk for PI – New York City. She has currently fundraised $1,550 and plans to earn more leading up to the walk. Her advice to fellow walkers who are trying to fundraise is to have your close friends talk to their friends, that way the social circle of donors grows quickly. Didi goes on to explain, “I walk for PI in the hopes that one day we can find a cure for these diseases. There are so many others out there who suffer from chronic issues due to having a weak or non-existent immune system and I hope that one day there will be a cure.”

If you are inspired by Didi and her story, please consider walking with her at www.walkforpi.org/newyork. Together, we are #ZebraStrong!

Who will join your herd?

Friday, September 13, 2019

It’s back-to-school time! Whether you’re a student or a parent of a student, you’ll be meeting new peers and teachers, making new friends, and/or reuniting with people you haven’t seen throughout the summer. This is a great time to ask people to join your IDF Walk for PI team!

Haven’t created your walk team yet? There’s still time! Round up your herd and register for the IDF Walk for PI 2019 season. It’s easier than ever to spread the word about your team and your walk with our new IDF Walk for PI app, available on Google Play and the App Store.

Click here to read more about the IDF Walk for PI app.


IDF Walk for PI 2019

National Walks (A-Z)
Boston, MA: Sunday, October 6
Chicago IL: Sunday, September 29
Los Angeles, CA: Sunday, November 17
New York, NY: Sunday, October 20
Philadelphia, PA: Sunday, October 13

Regional Walks (A-Z)
Atlanta, GA: Sunday, November 10
Baltimore, MD: Sunday, October 27
Cleveland, OH: Sunday, September 22
Dallas, TX: Saturday, November 9
Detroit, MI: Saturday, September 21
Orange County, CA: Saturday, November 16
San Francisco, CA: Sunday, September 22
St. Louis, MO: Saturday, October 12
St. Paul, MN: Saturday, October 5

Community Walks (A-Z)
Conway, SC: Saturday, November 9
Des Moines, IA: Sunday, September 22
Fort Lauderdale, FL: Saturday, December 7
Indianapolis, IN: Saturday, October 5
Kansas City, MO: Saturday, September 28
Leesburg, VA: Saturday, August 31
Omaha, NE: Sunday, September 8
Orlando, FL: Saturday, December 14
Portland, OR: Saturday, September 21
San Antonio, TX: Saturday, October 19
Tucson, AZ: Saturday, December 14
Warwick, RI: Sunday, September 8

National Walk Presenting Supporter
Takeda

National Walk Supporters 
CSL Behring
Grifols
Horizon Therapeutics
Octapharma

Joseph Maronski puts the FUN in Fundraising!

Tuesday, September 3, 2019

Fall is just around the corner. That means it is time for warm sweaters, pumpkin spice lattes, and of course 26 IDF Walk for PI events happening across the country. IDF Walk for PI is a time to walk as an IDF Community to raise awareness and funds for those living with PI. While you are just starting to begin to raise funds for your walk, we wanted to introduce you to Joseph Maronski, a long-time IDF fundraising activist.

Joseph first started his journey with IDF in 2012, when he was only in the 5th grade. This was the year that his brother, Vincent Maronski Jr., was officially diagnosed with Common Variable Immune Deficiency (CVID). Joseph was determined to fix his brother and to do that he decided to focus his efforts on fundraising. Since then Joseph has raised over $15,000 through various campaigns and donations! His most popular campaigns have included:

  1. The Pie for PI Challenge – co-founded by Joseph and Maddie Shaw.

    The Pie for PI Challenge was an in-school fundraising program to help educate students about primary immunodeficiency (PI) diseases and provide them with the opportunity to make a difference. The challenge created incentives for students to pie teachers and administration, while also creating a world record attempt for the worlds’ largest pie fight! This campaign was definitely designed to put the FUN in fundraising. Check out Marcia Boyle, IDF Founder, participating in Pie for PI after the students had raised over $3,500: https://www.facebook.com/ImmuneDeficiencyFoundation/videos/10152982844901781/
     
  2. Clothing Fundraisers

    Throughout the past seven years Joseph has held multiple clothing fundraisers. He has personally designed and sold bracelets, t-shirts, and sweatshirts in honor of his brother through Custom Ink which has allowed him to raise over $5,000. The clothing was always worn at every Walk for PI event his team and him attended!
     
  3. Icon Cards

    Joseph also raised money by doing an old-fashioned approach. He received icon cards from IDF by e-mailing: walk@primaryimmune.org and sold them for $2 each. The icon cards allowed students to write their name on the card, which entered them into a raffle for one of three gift cards. These icons cards generated around $1,000 in sales alone!

Joseph dedicates a lot of time and effort to fundraising, but he feels it is totally worth it in the end. He states, “Fundraising is about more than just money to me. It is about making a difference. It is about spreading awareness. It is about putting a smile on someone's face who may not have a reason to smile. Awareness is knowledge and knowledge creates change. The Walk for PI is an amazing way to spread awareness and allow people to forget about life for a few precious moments.”

We hope as you are preparing for IDF Walk for PI you are inspired by Joseph and try a new fundraising idea! Together we can spread awareness and change thousands of lives in the process.

P.S. You can see Joseph at numerous walks throughout the fall as our official IDF Walk for PI - MC! Make sure to stop and say hi! 

Strive to be an IDF Order of the Zebra!

Thursday, August 29, 2019

IDF Walk for PI 2019 Fundraising Contest - Week 3

Wednesday, August 28, 2019

Our last winner for our August fundraising contest is Aundrea Hood. Aundrea has raised $100 for IDF Walk for PI - Atlanta and has won an IDF sweatshirt. Congratulations and thank you to everyone who has participated! 

We hope you all continue to fundraise for your IDF Walk. Please share the walks with your friends and encourage them to donate at www.walkforpi.org/donate. Thank you! 

IDF Walk for PI 2019 Fundraising Contest - Week 2

Wednesday, August 28, 2019

Congratulations to our second fundraising contest winner, announced on Monday, August 19, Sara Penn! Sara has fundraised a total of $125 for IDF Walk for PI - St. Paul and has won an IDF blanket. 

If you want a chance to win make sure you are registered for an IDF Walk for PI event by visiting www.walkforpi.org. Then fundraise at least $25 towards your campaign to be eligible. Share the walk with your friends and encourage them to donate at www.walkforpi.org/donate. Good luck!

IDF Walk for PI 2019 Fundraising Contest - Winner 1

Friday, August 16, 2019

Beginning on August 5, 2019, we started an IDF Walk for PI 2019 fundraising contest! Anyone that raises $25 or more for any walk will be entered to win an exclusive IDF prize. Each Monday at 12 ET, we will randomly pick one winner who has raised at least $25 towards their personal Walk for PI campaign and announce it to our IDF Walk for PI Facebook at 12 Noon ET. The contest will run until Monday, August 26.

The first winner of our fundraising contest, announced on Monday, August 12 was Sonia Vohnout. Sonia has fundraised a total of $50 for her walk and won an IDF car organizer. Congratulations and keep up the great work, Sonia!

If you want a chance to win make sure you are registered for an IDF Walk for PI event by visiting www.walkforpi.org. Then fundraise at least $25 towards your campaign to be eligible. Share the walk with your friends and encourage them to donate at www.walkforpi.org/donate. Good luck!

Why is TZ being so funky?

Wednesday, August 7, 2019

TZ, the IDF Zebra, is so excited for IDF Walk for PI this fall! In honor of the walk season, TZ has been getting funky with it and wanted to share some special zebra moves with you! Join TZ in learning the official zebra dance. Follow the steps below to complete TZ’s Challenge and help raise funds towards your walk today using www.walkforpi.org/donate!



Haven’t registered? Make sure you register today so you can participate in the TZ Challenge. We can’t wait to see you this fall at an IDF Walk for PI.
 

IDF Walk for PI 2019 

National Walks (A-Z)
Boston, MA: Sunday, October 6
Chicago IL: Sunday, September 29
Los Angeles, CA: Sunday, November 17
New York, NY: Sunday, October 20
Philadelphia, PA: Sunday, October 13

Regional Walks (A-Z)
Atlanta, GA: Sunday, November 10
Baltimore, MD: Sunday, October 27
Cleveland, OH: Sunday, September 22
Dallas, TX: Saturday, November 9
Detroit, MI: Saturday, September 21
Orange County, CA: Saturday, November 16
San Francisco, CA: Sunday, September 22
St. Louis, MO: Saturday, October 12
St. Paul, MN: Saturday, October 5

Community Walks (A-Z)
Conway, SC: Saturday, November 9
Des Moines, IA: Sunday, September 22
Fort Lauderdale, FL: Saturday, December 7
Indianapolis, IN: Saturday, October 5
Kansas City, MO: Saturday, September 28
Leesburg, VA: Saturday, August 31
Omaha, NE: Sunday, September 8
Orlando, FL: Saturday, December 14
Portland, OR: Saturday, September 21
San Antonio, TX: Saturday, October 19
Tucson, AZ: Saturday, December 14
Warwick, RI: Sunday, September 8
National Walk Presenting Supporter
Takeda

National Walk Supporters 
CSL Behring
Grifols
Horizon Therapeutics
Octapharma


Learn more about IDF Walk for PI at www.walkforpi.org. Questions? Contact us atwalk@primaryimmune.org.

IDF Walk for PI Spotlight

Wednesday, August 7, 2019

IDF Walk for PI 2019 Registration Contest - Week 8 Winner

Wednesday, July 31, 2019

Congratulations to our winner, Vincent Fayette, for winning the IDF Walk for PI contest on Monday, July 29. Vincent won an exclusive IDF portable charger! 

Thank you for everyone who has participated in our IDF Walk for PI 2019 Registration Contest and thank you for your support of #walkforpi!

#StridewithIDFPride this year at one of our many walks!

IDF Walk for Primary Immunodeficiency 2019

_______________________________________

National Walks (A-Z)
Boston, MA: Sunday, October 6
Chicago IL: Sunday, September 29
Los Angeles, CA: Sunday, November 17
New York, NY: Sunday, October 20
Philadelphia, PA: Sunday, October 13

Regional Walks (A-Z)
Atlanta, GA: Sunday, November 10
Baltimore, MD: Sunday, October 27
Cleveland, OH: Sunday, September 22
Dallas, TX: Saturday, November 9
Detroit, MI: Saturday, September 21
Orange County, CA: Saturday, November 16
San Francisco, CA: Sunday, September 22
St. Louis, MO: Saturday, October 12
St. Paul, MN: Saturday, October 5

Community Walks (A-Z)
Conway, SC: Saturday, November 9
Des Moines, IA: Sunday, September 22
Fort Lauderdale, FL: Saturday, December 7
Indianapolis, IN: Saturday, October 5
Kansas City, MO : Saturday, September 2 8
Leesburg, VA: Saturday, August 31
Omaha, NE: Sunday, September 8
Orlando, FL:  Saturday, December 14
Portland, OR: Saturday, September 21
San Antonio, TX: Saturday, October 19
Tucson, AZ: Saturday, December 14
Warwick, RI: Sunday, September 8
 
Virtual Walk
Participate all year long!
______________________________________
National Walk Presenting Supporter

Takeda

National Walk Supporters 

CSL Behring
Grifols
Horizon Therapeutics
Octapharma

A new discovery - Thanks to you!

Monday, July 29, 2019

We have some exciting news to share. A new type of primary immunodeficiency disease (PI) has been discovered called TLR8-associated disease, and it is a direct result of people who participated in a Walk for PI event! 

Thanks to the funds raised by individuals that participated in an IDF Walk for PI, the Immune Deficiency Foundation (IDF) was able to award a 12-month research grant to Megan Cooper, MD, PhD of the St. Louis Children’s’ Hospital and Washington University School of Medicine, which led to the identification of TLR8-associated disease.

Join us at one of our 26 Walks across the country and continue your impact on the PI Community. By participating and raising funds, you are ensuring that IDF can continue to provide grants to power critical patient-focused research that will ultimately lead to cures of all types of PI.

Thank you for your continuous participation and support.  – The Walk Team at IDF

IDF Walk for PI 2019 

National Walks (A-Z)
Boston, MA: Sunday, October 6
Chicago IL: Sunday, September 29
Los Angeles, CA: Sunday, November 17
New York, NY: Sunday, October 20
Philadelphia, PA: Sunday, October 13

Regional Walks (A-Z)
Atlanta, GA: Sunday, November 10
Baltimore, MD: Sunday, October 27
Cleveland, OH: Sunday, September 22
Dallas, TX: Saturday, November 9
Detroit, MI: Saturday, September 21
Orange County, CA: Saturday, November 16
San Francisco, CA: Sunday, September 22
St. Louis, MO: Saturday, October 12
St. Paul, MN: Saturday, October 5

Community Walks (A-Z)
Conway, SC: Saturday, November 9
Des Moines, IA: Sunday, September 22
Fort Lauderdale, FL: Saturday, December 7
Indianapolis, IN: Saturday, October 5
Kansas City, MO: Saturday, September 28
Leesburg, VA: Saturday, August 31
Omaha, NE: Sunday, September 8
Orlando, FL: Saturday, December 14
Portland, OR: Saturday, September 21
San Antonio, TX: Saturday, October 19
Tucson, AZ: Saturday, December 14
Warwick, RI: Sunday, September 8
National Walk Presenting Supporter
Takeda

National Walk Supporters 
CSL Behring
Grifols
Horizon Therapeutics
Octapharma


Learn more about IDF Walk for PI at www.walkforpi.org. Questions? Contact us atwalk@primaryimmune.org.

IDF Walk for PI 2019 Registration Contest - Week 7 Winner

Tuesday, July 23, 2019

Congratulations to our winner, Lois Crudden, for winning the IDF Walk for PI contest on Monday, July 23. Lois won an exclusive IDF Walk for PI rain jacket! 

Are you interested in being our next winner? Register for a walk at  www.walkforpi.org before the end of July and you will be entered to win an IDF swag gift. Winners are announced on the IDF Walk for PI Facebook page every Monday in July at 12 Noon ET. Thank you for your support of #walkforpi!

#StridewithIDFPride this year at one of our many walks!

IDF Walk for Primary Immunodeficiency 2019

_______________________________________

National Walks (A-Z)
Boston, MA: Sunday, October 6
Chicago IL: Sunday, September 29
Los Angeles, CA: Sunday, November 17
New York, NY: Sunday, October 20
Philadelphia, PA: Sunday, October 13

Regional Walks (A-Z)
Atlanta, GA: Sunday, November 10
Baltimore, MD: Sunday, October 27
Cleveland, OH: Sunday, September 22
Dallas, TX: Saturday, November 9
Detroit, MI: Saturday, September 21
Orange County, CA: Saturday, November 16
San Francisco, CA: Sunday, September 22
St. Louis, MO: Saturday, October 12
St. Paul, MN: Saturday, October 5

Community Walks (A-Z)
Conway, SC: Saturday, November 9
Des Moines, IA: Sunday, September 22
Fort Lauderdale, FL: Saturday, December 7
Indianapolis, IN: Saturday, October 5
Kansas City, MO : Saturday, September 2 8
Leesburg, VA: Saturday, August 31
Omaha, NE: Sunday, September 8
Orlando, FL:  Saturday, December 14
Portland, OR: Saturday, September 21
San Antonio, TX: Saturday, October 19
Tucson, AZ: Saturday, December 14
Warwick, RI: Sunday, September 8
 
Virtual Walk
Participate all year long!
______________________________________
National Walk Presenting Supporter

Takeda

National Walk Supporters 

CSL Behring
Grifols
Horizon Therapeutics
Octapharma

IDF Walk for PI 2019 Registration Contest - Week 6 Winner

Monday, July 15, 2019

Congratulations to our winner, Agnes Medl, for winning the IDF Walk for PI contest on Monday, July 15. Agnes won an exclusive IDF Walk for PI folding chair! 

Are you interested in being our next winner? Register for a walk at  www.walkforpi.org before the end of July and you will be entered to win an IDF swag gift. Winners are announced on the IDF Walk for PI Facebook page every Monday in July at 12 Noon ET. Thank you for your support of #walkforpi!

#StridewithIDFPride this year at one of our many walks!

IDF Walk for Primary Immunodeficiency 2019

_______________________________________

National Walks (A-Z)
Boston, MA: Sunday, October 6
Chicago IL: Sunday, September 29
Los Angeles, CA: Sunday, November 17
New York, NY: Sunday, October 20
Philadelphia, PA: Sunday, October 13

Regional Walks (A-Z)
Atlanta, GA: Sunday, November 10
Baltimore, MD: Sunday, October 27
Cleveland, OH: Sunday, September 22
Dallas, TX: Saturday, November 9
Detroit, MI: Saturday, September 21
Orange County, CA: Saturday, November 16
San Francisco, CA: Sunday, September 22
St. Louis, MO: Saturday, October 12
St. Paul, MN: Saturday, October 5

Community Walks (A-Z)
Conway, SC: Saturday, November 9
Des Moines, IA: Sunday, September 22
Fort Lauderdale, FL: Saturday, December 7
Indianapolis, IN: Saturday, October 5
Kansas City, MO : Saturday, September 2 8
Leesburg, VA: Saturday, August 31
Omaha, NE: Sunday, September 8
Orlando, FL:  Saturday, December 14
Portland, OR: Saturday, September 21
San Antonio, TX: Saturday, October 19
Tucson, AZ: Saturday, December 14
Warwick, RI: Sunday, September 8
 
Virtual Walk
Participate all year long!
______________________________________
National Walk Presenting Supporter

Takeda

National Walk Supporters 

CSL Behring
Grifols
Horizon Therapeutics
Octapharma

IDF Walk for PI 2019 Registration Contest - Week 5 Winner

Friday, July 12, 2019

Congratulations to our winner, Marvin Harper, for winning the IDF Walk for PI contest on Monday, July 8. Holli won an exclusive IDF Walk for PI baseball cap! 

Are you interested in being our next winner? Register for a walk at www.walkforpi.org before the end of July and you will be entered to win an IDF swag gift. Winners are announced on the IDF Walk for PI Facebook page every Monday in July at 12 Noon ET. Thank you for your support of #walkforpi!

#StridewithIDFPride this year at one of our many walks!

IDF Walk for Primary Immunodeficiency 2019

_______________________________________

National Walks (A-Z)
Boston, MA: Sunday, October 6
Chicago IL: Sunday, September 29
Los Angeles, CA: Sunday, November 17
New York, NY: Sunday, October 20
Philadelphia, PA: Sunday, October 13

Regional Walks (A-Z)
Atlanta, GA: Sunday, November 10
Baltimore, MD: Sunday, October 27
Cleveland, OH: Sunday, September 22
Dallas, TX: Saturday, November 9
Detroit, MI: Saturday, September 21
Orange County, CA: Saturday, November 16
San Francisco, CA: Sunday, September 22
St. Louis, MO: Saturday, October 12
St. Paul, MN: Saturday, October 5

Community Walks (A-Z)
Conway, SC: Saturday, November 9
Des Moines, IA: Sunday, September 22
Fort Lauderdale, FL: Saturday, December 7
Indianapolis, IN: Saturday, October 5
Kansas City, MO: Saturday, September 28
Leesburg, VA: Saturday, August 31
Omaha, NE: Sunday, September 8
Orlando, FL: Saturday, December 14
Portland, OR: Saturday, September 21
San Antonio, TX: Saturday, October 19
Tucson, AZ: Saturday, December 14
Warwick, RI: Sunday, September 8
 
Virtual Walk
Participate all year long!
______________________________________
National Walk Presenting Supporter

Takeda

National Walk Supporters 

CSL Behring
Grifols
Horizon Therapeutics
Octapharma

Who do you walk for?

Friday, July 12, 2019

Meet Aubree, a four-year-old girl who lives in Massachusetts. Since she was a baby, she has experienced frequent ear infections, many episodes of bronchitis and a few cases of pneumonia. To help alleviate her constant illnesses, she had ear tubes placed as well as her adenoids and tonsils removed—none of which helped.

After years of struggling and battling infections, in October of 2018, Aubree was diagnosed with Common Variable Immune Deficiency (CVID), a type of primary immunodeficiency disease (PI). Since diagnosis, she visits the Boston Children’s Hospital every three-four weeks for a six-hour infusion of intravenous immunoglobulin replacement therapy (IVIG). This treatment helps her fight infections by giving her antibodies she can’t create. Fortunately, over the past six months, Aubree has built a wonderful supportive care team at Boston’s Children’s and has been able to build strong bonds with different people. She hopes
to continue to build these connections at her very first IDF Walk for PI this fall in Boston.

Her mother, Nicole, says, “We don’t know what the future holds with this diagnosis as every person is different hence the zebra symbol, but I know we have the support and love to get her through all of this!”

Is your story like Aubree’s? Do you know someone like her? No matter how you’ve been affected by PI, show your support this fall at IDF Walk for PI! Together, we can stride with IDF pride and continue to support individuals and families living with these rare, chronic disorders.  
 

IDF Walk for PI 2019 Registration Contest – Week 4 Winner

Friday, July 12, 2019

Our friend, TZ the IDF Zebra decided it was not enough to only give IDF swag gifts away in June. That is why he has extended our Walk for PI 2019 contest through the month of July! 

In honor of this, we would like to congratulate our winner, Holli Feller, for winning the IDF Walk for PI contest on Monday, July 1. Holli won an exclusive IDF Walk for PI water bottle!

Are you interested in being our next winner? Register for a walk at www.walkforpi.org before the end of July and you will be entered to win an IDF swag gift. Winners are announced on the IDF Walk for PI Facebook page every Monday in July at 12 Noon ET. Thank you for your support of #walkforpi!

#StridewithIDFPride this year at one of our many walks!

IDF Walk for Primary Immunodeficiency 2019

_______________________________________

National Walks (A-Z)
Boston, MA: Sunday, October 6
Chicago IL: Sunday, September 29
Los Angeles, CA: Sunday, November 17
New York, NY: Sunday, October 20
Philadelphia, PA: Sunday, October 13

Regional Walks (A-Z)
Atlanta, GA: Sunday, November 10
Baltimore, MD: Sunday, October 27
Cleveland, OH: Sunday, September 22
Dallas, TX: Saturday, November 9
Detroit, MI: Saturday, September 21
Orange County, CA: Saturday, November 16
San Francisco, CA: Sunday, September 22
St. Louis, MO: Saturday, October 12
St. Paul, MN: Saturday, October 5

Community Walks (A-Z)
Conway, SC: Saturday, November 9
Des Moines, IA: Sunday, September 22
Fort Lauderdale, FL: Saturday, December 7
Indianapolis, IN: Saturday, October 5
Kansas City, MO: Saturday, September 28
Leesburg, VA: Saturday, August 31
Omaha, NE: Sunday, September 8
Orlando, FL: Saturday, December 14
Portland, OR: Saturday, September 21
San Antonio, TX: Saturday, October 19
Tucson, AZ: Saturday, December 14
Warwick, RI: Sunday, September 8
 
Virtual Walk
Participate all year long!
______________________________________
National Walk Presenting Supporter

Takeda

National Walk Supporters 

CSL Behring
Grifols
Horizon Therapeutics
Octapharma

Double Your IDF Walk for PI Fundraising Efforts Today

Monday, July 1, 2019

Do you want to double the money you raise for IDF Walk for PI? If yes, then we’ve got an easy suggestion for you: use matching gifts!

Many corporations offer matching gift programs that can double an employee’s donation to an eligible nonprofit organization, including the Immune Deficiency Foundation (IDF). We want you to take advantage of this opportunity to potentially double or even triple your fundraising efforts for IDF Walk for PI 2019. Click here to see if your employer participates.

Remember, every dollar you raise through IDF Walk for PI supports educational resources and programs that help the entire PI community, and matching gifts can simply double the impact you have on people living with PI.

Share this fundraising tip with your friends, and tell them to sign up for a walk at www.walkforpi.org.

We look forward to seeing you at a walk this fall!
 
IDF Walk for PI 2019

National Walks (A-Z)
Boston, MA: Sunday, October 6
Chicago IL: Sunday, September 29
Los Angeles, CA: Sunday, November 17
New York, NY: Sunday, October 20
Philadelphia, PA: Sunday, October 13

Regional Walks (A-Z)
Atlanta, GA: Sunday, November 10
Baltimore, MD: Sunday, October 27
Cleveland, OH: Sunday, September 22
Dallas, TX: Saturday, November 9
Detroit, MI: Saturday, September 21
Orange County, CA: Saturday, November 16
San Francisco, CA: Sunday, September 22
St. Louis, MO: Saturday, October 12
St. Paul, MN: Saturday, October 5

Community Walks (A-Z)
Conway, SC: Saturday, November 9
Des Moines, IA: Sunday, September 22
Fort Lauderdale, FL: Saturday, December 7
Indianapolis, IN: Saturday, October 5
Kansas City, MO: Saturday, September 28
Leesburg, VA: Saturday, August 31
Omaha, NE: Sunday, September 8
Orlando, FL: Saturday, December 14
Portland, OR: Saturday, September 21
San Antonio, TX: Saturday, October 19
Tucson, AZ: Saturday, December 14
Warwick, RI: Sunday, September 8

National Walk Presenting Supporter
Takeda

National Walk Supporters 
CSL Behring
Grifols
Horizon Therapeutics
Octapharma
 
Click here to learn more about IDF Walk for PI. Questions? Contact us at walk@primaryimmune.org.

IDF Walk for PI 2019 Registration Contest – Week 3 Winner

Tuesday, June 18, 2019

Congratulations to our winner, Barbara Sletmoe, for winning the IDF Walk for PI Registration Contest on June 17. Barbara won an exclusive IDF umbrella!

Thank you for participating in our IDF Swag Gift drawings! If you haven’t registered for a 2019 PI Walk yet and want to, sign up at www.walkforpi.org. Hope to see you there!

#StridewithIDFPride this year at one of our many walks!

IDF Walk for Primary Immunodeficiency 2019

_______________________________________

National Walks (A-Z)
Boston, MA: Sunday, October 6
Chicago IL: Sunday, September 29
Los Angeles, CA: Sunday, November 17
New York, NY: Sunday, October 20
Philadelphia, PA: Sunday, October 13

Regional Walks (A-Z)
Atlanta, GA: Sunday, November 10
Baltimore, MD: Sunday, October 27
Cleveland, OH: Sunday, September 22
Dallas, TX: Saturday, November 9
Detroit, MI: Saturday, September 21
Orange County, CA: Saturday, November 16
San Francisco, CA: Sunday, September 22
St. Louis, MO: Saturday, October 12
St. Paul, MN: Saturday, October 5

Community Walks (A-Z)
Conway, SC: Saturday, November 9
Des Moines, IA: Sunday, September 22
Fort Lauderdale, FL: Saturday, December 7
Indianapolis, IN: Saturday, October 5
Kansas City, MO: Saturday, September 28
Leesburg, VA: Saturday, August 31
Omaha, NE: Sunday, September 8
Orlando, FL: Saturday, December 14
Portland, OR: Saturday, September 21
San Antonio, TX: Saturday, October 19
Tucson, AZ: Saturday, December 14
Warwick, RI: Sunday, September 8
 
Virtual Walk
Participate all year long!
______________________________________
National Walk Presenting Supporter

Takeda

National Walk Supporters 

CSL Behring
Grifols
Horizon Therapeutics
Octapharma

Interested in supporting and exhibiting at IDF Walk for PI? 
Click here to learn more.

IDF Walk for PI 2019 Registration Contest - Week 2 Winner

Tuesday, June 18, 2019

Congratulations to our winner, Jennifer Gaddis, for winning the IDF Walk for PI Registration Contest on June 10. Jennifer won an exclusive IDF duffel bag!

Are you interested in being our next winner? Register for a walk at www.walkforpi.org before June 20, 2019 - the first day of the IDF 2019 National Conference—you will be entered to win an IDF swag gift. Winners are announced on the IDF Walk for PI Facebook page on Mondays at 12 Noon ET: June 10 and June 17. Thank you for your support of #walkforpi!

#StridewithIDFPride this year at one of our many walks!

IDF Walk for Primary Immunodeficiency 2019

_______________________________________

National Walks (A-Z)
Boston, MA: Sunday, October 6
Chicago IL: Sunday, September 29
Los Angeles, CA: Sunday, November 17
New York, NY: Sunday, October 20
Philadelphia, PA: Sunday, October 13

Regional Walks (A-Z)
Atlanta, GA: Sunday, November 10
Baltimore, MD: Sunday, October 27
Cleveland, OH: Sunday, September 22
Dallas, TX: Saturday, November 9
Detroit, MI: Saturday, September 21
Orange County, CA: Saturday, November 16
San Francisco, CA: Sunday, September 22
St. Louis, MO: Saturday, October 12
St. Paul, MN: Saturday, October 5

Community Walks (A-Z)
Conway, SC: Saturday, November 9
Des Moines, IA: Sunday, September 22
Fort Lauderdale, FL: Saturday, December 7
Indianapolis, IN: Saturday, October 5
Kansas City, MO: Saturday, September 28
Leesburg, VA: Saturday, August 31
Omaha, NE: Sunday, September 8
Orlando, FL: Saturday, December 14
Portland, OR: Saturday, September 21
San Antonio, TX: Saturday, October 19
Tucson, AZ: Saturday, December 14
Warwick, RI: Sunday, September 8
 
Virtual Walk
Participate all year long!
______________________________________
National Walk Presenting Supporter

Takeda

National Walk Supporters 

CSL Behring
Grifols
Horizon Therapeutics
Octapharma

Interested in supporting and exhibiting at IDF Walk for PI? 
Click here to learn more.

IDF Walk for PI 2019 Registration Contest – Week 1 Winner

Wednesday, June 5, 2019

Congratulations to our winner, Christan Londino, for winning the IDF Walk for PI Registration Contest on June 3. Christan won an exclusive IDF umbrella!

Are you interested in being our next winner? Register for a walk at www.walkforpi.org before June 20, 2019 - the first day of the IDF 2019 National Conference—you will be entered to win an IDF swag gift. Winners are announced on the IDF Walk for PI Facebook page on Mondays at 12 Noon ET: June 10 and June 17. Thank you for your support of #walkforpi!

#StridewithIDFPride this year at one of our many walks!

IDF Walk for Primary Immunodeficiency 2019

_______________________________________

National Walks (A-Z)
Boston, MA: Sunday, October 6
Chicago IL: Sunday, September 29
Los Angeles, CA: Sunday, November 17
New York, NY: Sunday, October 20
Philadelphia, PA: Sunday, October 13

Regional Walks (A-Z)
Atlanta, GA: Sunday, November 10
Baltimore, MD: Sunday, October 27
Cleveland, OH: Sunday, September 22
Dallas, TX: Saturday, November 9
Detroit, MI: Saturday, September 21
Orange County, CA: Saturday, November 16
San Francisco, CA: Sunday, September 22
St. Louis, MO: Saturday, October 12
St. Paul, MN: Saturday, October 5

Community Walks (A-Z)
Conway, SC: Saturday, November 9
Des Moines, IA: Sunday, September 22
Fort Lauderdale, FL: Saturday, December 7
Indianapolis, IN: Saturday, October 5
Kansas City, MO: Saturday, September 28
Leesburg, VA: Saturday, August 31
Omaha, NE: Sunday, September 8
Orlando, FL: Saturday, December 14
Portland, OR: Saturday, September 21
San Antonio, TX: Saturday, October 19
Tucson, AZ: Saturday, December 14
Warwick, RI: Sunday, September 8
 
Virtual Walk
Participate all year long!
______________________________________
National Walk Presenting Supporter

Takeda

National Walk Supporters 

CSL Behring
Grifols
Horizon Therapeutics
Octapharma

Interested in supporting and exhibiting at IDF Walk for PI? 
Click here to learn more.

 

It’s time! Register for IDF Walk for PI 2019!

Thursday, May 30, 2019

Dust off your walking shoes, and text your team members. It’s time to register for IDF Walk for Primary Immunodeficiency 2019!
 

With a just few clicks, you will be on your way to supporting people affected by primary immunodeficiency diseases (PI). That’s right, we’ve launched a new website this year, designed with you and your team in mind. Check it out, register for a walk near you, and let us know what you think: www.walkforPI.org.


TZ the IDF Zebra loves the new www.walkforPI.org

Where We Walk
We’re expanding the walks this year and coming to a city near you! You can walk with us in the following cities listed below or click to sign up for a Virtual Walk! 
 
_______________________________________

National Walks (A-Z)
Boston, MA: Sunday, October 6
Chicago IL: Sunday, September 29
Los Angeles, CA: Sunday, November 17
New York, NY: Sunday, October 20
Philadelphia, PA: Sunday, October 13

Regional Walks (A-Z)
Atlanta, GA: Sunday, November 10
Baltimore, MD: Sunday, October 27
Cleveland, OH: Sunday, September 22
Dallas, TX: Saturday, November 9
Detroit, MI: Saturday, September 21
Orange County, CA: Saturday, November 16
San Francisco, CA: Sunday, September 22
St. Louis, MO: Saturday, October 12
St. Paul, MN: Saturday, October 5

Community Walks (A-Z)
Conway, SC: Saturday, November 9
Des Moines, IA: Sunday, September 22
Fort Lauderdale, FL: Saturday, December 7
Indianapolis, IN: Saturday, October 5
Kansas City, MO: Saturday, September 28
Leesburg, VA: Saturday, August 31
Omaha, NE: Sunday, September 8
Portland, OR: Saturday, September 21
San Antonio, TX: Saturday, October 19
Tucson, AZ: Saturday, December 14
Warwick, RI: Sunday, September 8
______________________________________


Register Now & Win
 
If you register you or your team before June 20, 2019—the first day of the IDF 2019 National Conference—you will be entered to win one of these fabulous prizes:
 

Winners will be announced on the IDF Walk for PI Facebook page on Mondays at 12 Noon ET: June 3, June 10 and June 17. (Make sure to follow us: www.facebook.com/walkforPI.)
 
Stride with IDF Pride: 4 Steps to Success
 
We want you and your team to Stride with IDF Pride! You will receive the 4 Steps to Success as soon as you register so that you can make this year the best yet.
 


Remember, with each step you take, you help create better lives for people with PI. The funds you raise go directly to IDF to support programs and resources for individuals with PI and their families, and they enable IDF to support research! Did you know that since 2017 the IDF Research Grant Program has awarded 14 grants to PI researchers totaling $375,000? All made possible because of IDF Walk for PI funds…because of people like you!
 
Raise $125 (or More!)
We challenge you to raise a minimum of $125 this year, and we know you can do it between now and your walk! We have resources on our new website to help you! And, of course, when you raise $25, you’ll receive the exclusive IDF Walk for PI 2019 t-shirt.
 

You will make a difference this year and in years to come as you #StridewithIDFPride! Thank you for your support of IDF Walk for PI 2019!
 

Questions about IDF Walk for PI?
Click here to contact us

__________________________________________________________

 
National Walk Presenting Supporter

Takeda

National Walk Supporters 

CSL Behring
Grifols
Horizon Therapeutics
Octapharma

Interested in supporting and exhibiting at IDF Walk for PI? 
Click here to learn more.

__________________________________________________________

Tell Us Your Walk for PI Experience!

Wednesday, May 22, 2019

IDF Walk for PI registration is here and we want to hear from you! Visit the IDF Walk for PI Facebook page to tell us why you’re excited for the 2019 season, share your favorite memory/experience at a walk and/or share photos from past walks. Who knows—you might even get a shout-out from our favorite zebra, TZ the IDF Zebra!

IDF Walk for PI 2019
 
National Walks (A-Z)
Boston, MA – October 6
Chicago, IL – September 29
Los Angeles, CA – November 17
New York, NY – October 20
Philadelphia, PA – October 13
 
Regional Walks (A-Z)
Atlanta, GA – November 10
Baltimore, MD – October 27
Cleveland, OH – September 22
Dallas, TX – November 9
Detroit, MI – September 21
Orange County, CA – November 16
St. Louis, MO– October 12
St. Paul, MN – October 5
San Francisco, CA – September 22
 
Community Walks (A-Z)
Conway, SC - November 9
Des Moines, IA - September 22
Fort Lauderdale, FL – December 7
Indianapolis, IN – October 5
Kansas City, MO – September 28
Leesburg, VA – August 31
Omaha, NE – September 8
Portland, OR – September 21
San Antonio, TX – October 19
Tucson, AZ – December 14
Warwick, RI – September 8

National Walk Presenting Supporter
Takeda

National Walk Supporters 
CSL Behring
Grifols
Horizon Pharma
Octapharma