FAQ

IDF Walk for Primary Immunodeficiency unites the PI community to help create better lives and find cures for individuals living with these rare, chronic diseases.

Donations help IDF provide resources and services to the thousands who live with PI. IDF is a 501 (c)(3) non-profit organization, and contributions are tax-deductible to the maximum extent allowed by IRS regulations. Please consult a tax advisor to determine the tax deductibility of contributions.

Just like all walkers, patients and families affected by PI are encouraged to raise funds. Many of our highest individual fundraisers are patients and families.

While it is encouraged to pre-register for IDF Walk for PI, we do offer registration on the day of the walk on site. Keep in mind that by registering prior to the walk you will have more time to maximize your fundraising prior to the walk! All walkers, regardless of age, must register to participate in IDF Walk for PI.

A registration fee is not required to participate. However, participants are encouraged to fundraise at least $125 for those affected by PI. Upon registration and fundraising at least $25, you will be eligible to receive an IDF Walk for PI t-shirt. 

Prizes can be picked up on walk day at our Prize Pick Up tent.  Walkers who raise $25 or more by walk day will receive an official IDF Walk for PI t-shirt at the walk. All registered participants will receive a small gift. There are other great prizes available for raising $250 or more. You will be sent an e-mail when the online prize claim form is ready, typically in December. Once you complete the claim form, you will receive your incentive in about four to six weeks.

Note: All prizes are awarded based on individual contributions and/or what the individual has raised. Prizes are not awarded on what a team has raised if you are part of a team, or on what a couple has raised if you are part of a couple. 

Walkers who raise $25 or more by walk day will receive an official IDF Walk for PI t-shirt at the walk. In order to receive your t-shirt at the walk, be sure to get in all of your donations beforehand.

We will do our best to ensure you receive your correct size.

IDF Walk for PI is a family-friendly walk. Children and strollers are welcome to participate in the walk but must be under direct adult supervision at all times. All ages may register for the walk, but please note that t-shirts are adult unisex sizes.

Every adult who wishes to participate in the walk must register individually. If you are part of a couple, each of you will need to register.

The walk will take place rain or shine. Unless there are extreme weather conditions, the walk will go on. If rain is in the forecast, please dress accordingly so that fun will still be had by all! There will be no rain dates.

You do not need to walk in order to participate! Each walk route will be approximately 1.0 to 1.5 miles long and is intended to be easily accessible by stroller and wheelchair. This is a non-competitive walk, and all participants are encouraged to walk at their own pace, at a distance that they are comfortable with and able to complete without causing any physical strain. Any walker who is a patient with a primary immunodeficiency disease (or the parent of a walker under age 18) should confirm with their physician whether participation in the walk is advisable.

Absolutely! We welcome volunteers of ages 15 or older. While the volunteer tasks may vary with each walk, the IDF Walk for PI Volunteer Coordinator will assist with recruiting local volunteers prior to the walk day and help to manage volunteers the day of the walk. If you have any questions about our volunteer opportunities, e-mail volunteer@primaryimmune.org

We are grateful for the support of national and local organizations. For more information, contact IDF at 800-296-4433, or e-mail us at walk@primaryimmune.org.

While we encourage online giving, we do accept checks. Please make your check payable to: Immune Deficiency Foundation, with the memo line “Walk for PI: and include the City of the walk”

Mail it to the following address:
Immune Deficiency Foundation
110 West Road, Suite 300
Towson, MD 21204

Please make sure that in the memo it says who the donations should be credited. Once your gift is received by IDF, a tax receipt will be mailed or emailed to you. Please include an email address if you would like this document to be emailed.

Not all sites are pet-friendly. Please confirm with IDF as to which sites are welcoming of your furry friend. Also, keep in mind that not everyone is comfortable with pets, many people are allergic, and many animals react differently in large crowds than they do at home.

The IDF Order of the Zebra is an elite group of fundraisers whose efforts make an extraordinary impact on the success of IDF Walk for PI. Each year, if you set a fundraising goal of $1,000 or more on your personal fundraising page and reach that goal before mid-December, you will be inducted into the IDF Order of the Zebra for that year. IDF Order of the Zebra is an annual tradition, and we’re grateful for those who reach this level year after year!

You too can become a member of the IDF Order of the Zebra by raising $1,000 or more on your personal fundraising page each year!

Members of the IDF Order of the Zebra receive the following benefits:
* A special item signifying your order membership that can be worn at the walk.
* An announcement of your name during the opening remarks at the walk.
* Listing of your name as an order member on the walk website.
* A special badge for your personal fundraising page that signifies your membership.
* A thank you letter from John Boyle, IDF President & CEO.

IDF will reach out and make sure that you have the resources that you need to join the order. IDF is committed to helping you reach your goal because of the impact that your efforts will have on IDF Walk for PI! 

* Individual totals of $1,000 or more count towards the Order of the Zebra.

If your team is one of the top three who raises the most funds, you will earn a spot in the Top Team Village! The Village will provide a meeting spot for your team with a table and chairs that you can decorate, along with exclusive perks and activities! Who will earn a spot in the Top Team Village this year? Good luck!

Teams will be determined by the Wednesday prior to each walk at 5:00 PM ET. Confirmed teams will be notified the Thursday prior by email.

*Teams in the Top Team Village are welcome to bring a tent for their space. Tents must be approved by an IDF staff member prior to the walk.

**Please note that any balloons used as decorations must be mylar.

*** Chairs and tables will only be provided for national and regional walks.

There will be a variety of fun things going on at the walk, including meeting and mingling with other members of the PI community and our sponsors. There will be food available. If you have special dietary restrictions, we suggest that you bring along your own snacks.

Yes. You can make a donation to a Participant on a team or you can make a general team donation.

Please make your check payable to: Immune Deficiency Foundation, with the memo line “Walk for PI: and include the City of the walk”

Please make sure that in the memo it says who the donations should be credited to. Once your gift is received by IDF, a tax receipt will be mailed or emailed to you. Please send email address if you would like this document to be emailed.

All donations should be mailed to:
Immune Deficiency Foundation
110 West Road, Suite 300
Towson, MD 21204.

Please make all checks payable to: Immune Deficiency Foundation.
Please make sure that in the memo it says IDF Walk for PI and who the donations should be credited to.

Once your gift is received by IDF, a tax receipt will be mailed or emailed to you. Please send email address if you would like this document to be emailed.

Click on the home page and begin typing the first or last name. Your options will display as you type.

Any donation made online should post immediately. If an online donation does not post within 10 minutes, please contact us.

If you check this checkbox, you will be charged the amount indicated next to the checkbox. This amount will also be visible to the non-profit. However, on the fundraising page, your intended - initial donation amount will be displayed.

All monetary donations are tax-deductible to the extent allowed by law.

Yes. For Canadian donations made online with a credit card, the amount entered in the online donation form will be in U.S. dollars.

Any donor who mailed their donation and provided an address will receive a receipt via mail once the donation has been processed. If you made your donation in installments, you will receive a receipt each time a monthly payment is processed.

Please send email address if you would like this document to be emailed.

Yes, anyone who donates online, regardless of the amount, will receive a receipt via email.

A Tax ID number identifies Immune Deficiency Foundation as a 501(c)(3) non-profit Organization. The Immune Deficiency Foundation Tax ID number is 52-1214782

When you make a donation online, you can designate what you want to appear as your recognition name on the participant's Honor Roll. This may be your name, or it could be something such as "From the whole Wolf family" or "in memory of Aunt Cathy."

If a donation check has been written out to you personally, you may endorse the back of the check and mail it in with a completed donation form to Immune Deficiency Foundation.

 

It is not a good idea to send a cash donation in the mail. You may drop off the cash at Immune Deficiency Foundation along with your information or you can deposit the cash into your checking account and send a personal check from your account.

Please make your check payable to: Immune Deficiency Foundation, with the memo line “Walk for PI: and include the City of the walk”

Mail it to the following address:
Immune Deficiency Foundation
110 West Road, Suite 300
Towson, MD 21204

Please make sure that in the memo it says who the donations should be credited to. Once your gift is received by IDF, a tax receipt will be mailed or emailed to you. Please send email address if you would like this document to be emailed.

Any donation made online should post immediately. If your donation does not post within 10 minutes, please contact Immune Deficiency Foundation.

You can't enter a check online. What you can do is enter a check as a pledge. This can be done in the fundraising section of your headquarters page. The status of the check will be pending until the check is received by Immune Deficiency Foundation.

A Tax ID number identifies Immune Deficiency Foundation as a 501(c)(3) non-profit organization. Many donors will request this number to validate their donation as tax-deductible. The Immune Deficiency Foundation Tax ID number is 52-1214782.

As your donors make a contribution, they have the option of whether or not they want to appear in the Honor Roll.

Log in with your email and password to visit your headquarters page. Select My Fundraising Report on the left side. You will then find a list of all of your donors as well as a list of all donors to your team .

To easily send thank-you emails to donors, follow these steps:

1. Log in to your fundraiser dashboard by clicking the "My HQ" link in the top right
2. Click "My Fundraising Report" in the left sidebar
3. Locate the donor/donation you'd like to thank, and click "Send Email" (If the donor didn't submit their email address, this option is unavailable.)
4. Type the message in the pop-up window, and click "Send Email"

You are receiving these emails because we would like to keep you updated on your fundraising efforts. If you wish to stop receiving these updates, please login to your headquarters and edit your account preferences.

A personal URL is a shortened link to your team or personal page that you can send to friends and family in emails. A personal URL will look like this https://www.walkforpi.org/ben.

When a donor makes a donation online, s/he can enter text to appear on the fundraising honor roll. This may be the donor's name, or it could be something like "From the whole Wolf family" or "In Memory of Aunt Cathy".