Dear Family & Friends,
On September 19th, we'll join the IDF's Walk for Primary Immunodeficiency - Baltimore - with a virtual walk. We do this to support Kevin and all others who live with a Primary Immune Disease. When Kevin was first diagnosed in 2010 after 20 years of illnesses, infections and too many doctor visits to count, his doctor gave him the IDF Patient & Family Handbook. That was our introduction to Primary Immune Diseases - and an invaluable educational tool - as we navigated our new reality of life with PI.
Over the years, as Kevin adjusted to new doctors, weekly immunoglobulin infusions and daily life with a rare, chronic disease, IDF was always there. First with a website chocked full of educational and support materials, then webinars, in-person educational conferences, walks, a national conference in D.C. and, during this COVID pandemic, frequent educational meetings with top experts and PI panelists, on Zoom. And now, our connection with IDF is even more personal! Kevin's fiance, Alissa, MPH, took a job with IDF after meeting Kevin and is now an IDF Program Manager.
We know our story is just one of thousands and we enjoyed meeting many others who live with PI at last year's National Conference, National Harbor. IDF has been invaluable in educating & supporting individuals & families with PI through meetings, research & lobbying for all PI needs. We are blessed by this organization and proud to stand with others so no one faces PI alone.
Please help us support the Immune Deficiency Foundation & those with PI by making a contribution to IDF, joining our team, becoming a plasma donor or in another way of your choosing. Our collective efforts will advance the Immune Deficiency Foundation’s great cause.
Thank you & Stay Well!
Lisa, Sean, Kevin, Alissa, Ryan, Colleen & Patrick