Our Walk for PI: Chicago 2020 Team Page

Team Superman

Team Superman

Please help us support Immune Deficiency Foundation by making a contribution to our team and sharing this page with your family and friends. Every dollar we raise will advance Immune Deficiency Foundation's great cause!

Together, we can make a difference!

SEP
20

For those of you that don’t know Matts story, Matt was diagnosed with X-linked Agammaglobulinemia (XLA) in the winter of 2011 at about 7 months of age. He spent 3 weeks at Children’s Memorial (now Lurie Children’s) fighting for his life and was thankfully diagnosed and treated by the best teams of doctors and nurses. He had about 6-7 Departments working together to figure out his condition. Finally Dr Ramsey Fuleihan and the Immunology team stepped in and saved his life. Dr. Fuleihan ordered more testing and his first round of IvIG. He immediately perked up and became his little self again. After a couple of rounds, he was released and then his genetic testing came in and was diagnosed with XLA, one of many primary immune deficiency disorders. It was an incredibly scary time in our lives. We couldn’t have made it through without all of our family and friends by our side and the amazing doctors and nurses that saved and cared for him. We are truly blessed! Matt has been doing very well. After 8 years of spending 4-5 hours every 3 weeks at the Infusion Center at Lurie in the Blood Disorder Clinic, in 2018 we started sub Q infusions at home. A nurse trained Brad and I to give Matt sub-Q infusions of iG antibodies every week. His infusions last around 1-1.5 hours. So much better than the day hike to the city and now he can hang and play his video games and watch tv and not have to miss school!

Another year Team Superman! Thanks for your continued support of IDF and our Matty. Although this year is different and we all can’t be together at Cantigny, we can still walk together to support this amazing foundation and all our Zebras out there. This year more than ever, your support is needed to continue to improve the lives of people living with PI deficiencies as we navigate through so many unknowns with COVID-19. Join us in the neighborhood for our team walk or walk with your family and friends on Oct 3rd and support our team and wear your Superman gear!! 💙 the Jacobsens

Comments

$3,790
raised of $625 goal
 

13 Participants

recruited
Join Our Team

Recent Donations

$500.00
1. Andrea & Jeff Bucklar
$50.00
2. Laurie Ichniowski
Go Team Superman!
$100.00
3. Robert & Karin Glenn
$50.00
4. Anonymous
Sorry we were not able to walk with you this year. Go Team Superman!
$500.00
5. Zito Family
Hope Team Superman had a great event today! Go Matt!!!
$50.00
6. Granato Family