For those of you that don’t know Matts story, Matt was diagnosed with X-linked Agammaglobulinemia (XLA) in the winter of 2011 at about 7 months of age. He spent 3 weeks at Children’s Memorial (now Lurie Children’s) fighting for his life and was thankfully diagnosed and treated by the best teams of doctors and nurses. He had about 6-7 Departments working together to figure out his condition. Finally Dr Ramsey Fuleihan and the Immunology team stepped in and saved his life. Dr. Fuleihan ordered more testing and his first round of IvIG. He immediately perked up and became his little self again. After a couple of rounds, he was released and then his genetic testing came in and was diagnosed with XLA, one of many primary immune deficiency disorders. It was an incredibly scary time in our lives. We couldn’t have made it through without all of our family and friends by our side and the amazing doctors and nurses that saved and cared for him. We are truly blessed! Matt has been doing very well. After 8 years of spending 4-5 hours every 3 weeks at the Infusion Center at Lurie in the Blood Disorder Clinic, in 2018 we started sub Q infusions at home. A nurse trained Brad and I to give Matt sub-Q infusions of iG antibodies every week. His infusions last around 1-1.5 hours. So much better than the day hike to the city and now he can hang and play his video games and watch tv and not have to miss school!