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Thankful for the little things...that make a huge difference.

Curtis Anderson

Curtis Anderson

It seems like it was a year ago, when I was talking about us doing a virtual walk in order to keep everyone safe, and many were thinking we would be back to "normal" next year. Well, not so much.

As of this writing, we here at Casa de CuKo are on day 549 of quarantine and normal (or even the "new normal") is all about perspective. Of course, we miss the big things (family, MLB baseball games, babies born, weddings, funerals, traveling, MLB baseball games, etc.). And, with perspective, the little things we miss don't really matter - because there are many things to be thankful for.
-Family and friends who are patient and understanding.
-Employers that allow us to be safe and work remotely.
-Little League games. It's baseball, prospects of future prospects.
-IDF for their virus and vaccine updates.
-The IDF community for helping us not feel like we are the only ones.
-My medical team of doctors in various specialties, my home infusion nurse, and my friend at the lab - who take big risks and help keep me safe.
-Not being sick, going to urgent care, or ED. (okay, this is actually a big thing, and definitely not normal for me)
-My better half and all that she does to keep me safe and alive. Celebrating 20 years this year, and the past 549 days have been some of the most stressful but also some of the best with my best friend.

Given all that we are thankful for, this zebra* has agreed to more public humiliation…this time on a grander scale.
- If we raise $10K by 11:59pm on Friday, October 8th, I will wear my zebra costume at the Milwaukee County Zoo for the walk on October 9th. Many may argue that I wear this costume annually. Yes, but NEVER in a public or non-walk-related venue. So, if you want me to stress that introverted energy….
- If we don’t meet the October deadline, but we still surpass a $15K goal this year, I will walk in his zebra costume at the zoo WHEN we meet that goal.
- If you donate plasma TWICE between now and October 8th, we will donate $100 in your name. [Photographic evidence will be required. :) ] Plasma donations are what keep me alive and healthy – this is also how I will get the necessary antibodies, from others who have had the virus or who have been vaccinated.

There are a lot of folks in need. If this doesn’t meet your giving plan for this year, no worries. We would still love to hear from you. Drop us an email or text when/if you think of it.

And, as always, thank you to IDF for all the things you did to support us through the “before times” and now through the “next normal”, whatever that may be!

*The phrase “zebra” stems from a familiar saying: "when you hear hoof beats, think horses, not zebras." In medical school, doctors are taught to focus on the likeliest possibilities ("horses") when making a diagnosis, not the unusual ones ("zebras"). However, sometimes physicians need to look for a zebra. Patients with primary immunodeficiency diseases (PID) are the zebras of the medical world.

In this context, I am a zebra. I was diagnosed with Common Variable Immune Deficiency (CVID) at roughly nine years old. It is a genetic condition; and, as treatment, I receive monthly infusions of IVIG - a drug that essentially replaces my immune system on a monthly basis. (It is administered intravenously over the course of several hours - approximately four in my case.) As a result of my condition, I am prone to any illness that is making the current rounds as well as myriad complications commonly associated with CVID. In general, I am very fortunate in that stay relatively healthy. Many patients with PI suffer from repeated illnesses, resulting in frequent hospital trips and the inability to attend school or work on a regular basis.
OCT
8

I walked 3.91 km towards my goal!

OCT
4

I walked 4.17 km towards my goal!

OCT
3

I walked 4.57 km towards my goal!

SEP
30

I walked 2 km towards my goal!

AUG
21

I walked 1.94 km towards my goal!

AUG
8

I walked 5.4 km towards my goal!

AUG
1

I walked 4.96 km towards my goal!

JUL
30

I walked 5.14 km towards my goal!

JUL
29

I walked 3.76 km towards my goal!

JUL
28

I walked 4.05 km towards my goal!

JUL
27

I walked 5.08 km towards my goal!

JUL
25

I walked 5.58 km towards my goal!

JUL
23

I walked 5.62 km towards my goal!

JUL
5

I rode 0.05 km towards my goal!

JUL
4

I walked 2.54 km towards my goal!

JUL
3

I walked 3.67 km towards my goal!

I walked 2.9 km towards my goal!

JUL
2

I walked 2.14 km towards my goal!

I walked 0.58 km towards my goal!

I walked 2.92 km towards my goal!

JUN
30

I walked 2.63 km towards my goal!

I walked 2.82 km towards my goal!

I walked 2.09 km towards my goal!

JUN
29

I walked 2.77 km towards my goal!

I rode 0.08 km towards my goal!

JUN
27

I walked 3.55 km towards my goal!

I walked 1.54 km towards my goal!

JUN
26

I rode 1.04 km towards my goal!

Comments

$6,305
raised of $7,500 goal
 

Achievements

Recent Donations

$50.00
1. William Geissel
2. Anonymous
Love you Curt!!
$25.00
3. Lora Stumpf
$100.00
4. Patricia Vanderheyden
$25.00
5. Katie Hammerling
$50.00
6. Terri Boehm
Captain

Team CuKo

$14,555
$15,000