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My IDF Walk for PI Indianapolis Fundraising Page

Nicki Scott

Nicki Scott

I'm Gracie, and this is my story.

At three months I developed a virus in my in my lungs. I was in the intensive care unit (ICU) for approximately a week. Over the next five years I visited my pediatrician, specialist after specialist, and hospitals often with recurrent infections in my lungs and ears. I was diagnosed with Asthma and started taking daily inhaled medication for my lungs, but why infection after infection?
At this point, I required antibiotics and steroids monthly. I had more surgeries, as well as multiple hospitalizations for
pneumonia. All the doctors said I was ‘just a sick kid”.
About age seven my lung and ear infections started to decrease, and I began to get recurrent sinus infections. More surgeries over the next few years and by age 12 I was taking antibiotics daily and steroids almost daily.
I got super sick and was admitted to the hospital in ICU again.
An Immunologist ordered numerous tests. Within 24 hours blood tests showed my immune system was severely deficient.
In February of 2013 I was Diagnosed with a genetic disease, Primary Immune deficiency called (CVID) Common Variable Immune Deficiency. I began immunoglobulin Therapy at age 13 every 4 weeks to help boost my immune system. This does not cure my immune deficiency, it just helps.
I'm 21 years old now. I still get sick and require antibiotics intermittently, but I try my best to lead a normal life. I love to Golf, draw, listen to music, and hang out with my friends and family. I'm doing well on therapy. I 'm so thankful for God, my mom, dad, sister and brother, as well as friends, family, my healthcare team, and the Immune Deficiency Foundation.
I appreciate all you do for me. I truly have an awesome support system.
My goal is to bring awareness to Primary Immunodeficiency and to improve early diagnosis, treatment and quality of life.

Much love and blessings, Gracie

Please help me support Immune Deficiency Foundation by making a contribution to my fundraiser and sharing this page with your family and friends. Every dollar I raise will advance Immune Deficiency Foundation's great cause! Additionally, you can ask me how you can get involved too.
Together, we can make a difference!


raised of $125 goal


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