As a mother and grandmother with Primary Immunodeficiency Disorder (PI), I am raising funds to help support the Immune Deficiency Foundation (IDF).
IDF improves the diagnosis, treatment, and quality of life of people affected by PI through fostering a community empowered by advocacy, education, and research.
("When you hear hoofbeats, think of horses, not zebras" has been a popular medical proverb since about the 1950s. The saying means that one (such as a doctor) should look for the expected cause first, rather than the exotic).
The Zebra is the Mascot for those of us with PI. We are not the norm, and it can take many years of frustration, and multiple medical specialists, to obtain the proper diagnoses.
Personally, I have suffering from chronic lung infections and was hospitalized with pneumonia for the first time when I was 4 years-old.
My organs began to shut down in 2016, leading to my current diagnosis of Common Variable Immunodeficiency Disorder (CVID).
Since my body does not produce Immunoglobulins that fight infection, I have relied upon weekly Plasma infusion treatments for the past 4 years. Infusions keep me alive, and they are a lifelong process.
Many thanks to those who donate Plasma.
If you choose to share this page with your family and friends on social media we can spread the word to a wider community.
#piawareness #thinkzebra #zebrastrong #primaryimmune
Check out walkforpi.org for more info. And, if you're really curious, check out primaryimmune.org
Every tax-deductible donation is sincerely appreciated.
Thank you for supporting this Zebra.